Tag Archives: joint pain

What’s Next for the Knees? Nothing (for now).

17 Mar

Following on from my previous post, where I’d written about having had an appointment with my GP about my painful knee – here’s my update…

I had an x-ray done at the local hospital, and the radiographer’s report was that the only abnormality in my knee was that I have osteoporosis (bone thinning).

Feeling unsure of this, as that diagnosis wouldn’t explain the pain I’ve been experiencing, I have also been for a consultation with the surgeon who replaced my hips (as I trust him completely). He too has said that my knee isn’t arthritic to the point of needing replacement yet (hooray!), and that the osteoporosis the radiographer had said was there is actually just localised due to previous surgeries I’ve had. Other operations affected how my bones grew and thus have left them less dense than would be expected in someone of my age. So, that’s all good news. However! Neither of those observations explain the pain in my knee. The consultant has said that he thinks the problem behind the pain is that my patellas (knee caps) are lower than they should be…

Right knee

This, combined with my legs not being straight means that they’re being pulled to one side and this is causing the pain. There isn’t anything that can safely (and with confidence) be done about this, so in essence, I must deal with it and live with the pain. Not ideal. There are positives, as it means I don’t need to take time away from my PhD studies for surgery, and that joint replacement isn’t required as I had feared it may be – but the thought of the daily pain isn’t great.

So, no major news… but this is the update about what is next for the knee, and the answer is, for now, nothing. It’ll just continue to painfully grind inside and pop and click.

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What’s next for the knees?

18 Feb

Since my hips were┬áreplaced, I haven’t written much for this blog beyond awareness posts. Primarily because those wonderful new joints have allowed me to live with reduced pain, so I’ve been getting on with life. However…

Over the last year or so, my knee joints – especially the right one – have been getting increasingly more painful. I’ve tried ignoring it. I’ve tried being kinder to it (less moving about). I’ve tried painkillers (paracetamol, ibuprofen…). None of this has worked, and I can’t even use crutches for a while either now my shoulders have decided to join the painful joint club! So, last week, I decided to go and see a GP about this nuisance joint. I’ve owned up that I’m not coping particularly well with the pain (unlike me to be honest about that..) and that I think it needs some attention from a medical pro!

My condition hasn’t been followed up at all since the last NHS surgery was done 6 years ago – and even then, the check ups were just in relation to the frame that had been fitted to my leg. Whether my body needs medical attention has – until now – been left to me to determine. This hasn’t impressed my new GP, who feels that the joints should have been monitored to prevent the pain getting as bad as it has (to the point where I’ve opted to work from home when I can, so I can wrap the knee up in heated blankets or with heat pads to relieve the pain). So, the new GP has given me a prescription for a stronger painkiller for the short-term, but has also sent me to have an x-ray of the knee joint. I have an appointment next week to discuss the x-ray and the next move (which I’m afraid may well be joint replacement – which will be quite something to juggle with my current life plans). The GP has said before this appointment, he will read through my medical notes so he can give the best advice and referrals… this is partially great news, as it means maybe something can be done to reduce the pain, but also something I’m dreading – as once again, this condition has the potential to throw a spanner in the works of my life!

There isn’t a conclusive point to this post… I just thought I’d write it now, so those who read this blog to see what they/their children may face when living with pseudoachondroplasia can follow through what happened and when – as I think this is the beginning of the next joint problem journey!

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