What’s next for the knees?

18 Feb

Since my hips were replaced, I haven’t written much for this blog beyond awareness posts. Primarily because those wonderful new joints have allowed me to live with reduced pain, so I’ve been getting on with life. However…

Over the last year or so, my knee joints – especially the right one – have been getting increasingly more painful. I’ve tried ignoring it. I’ve tried being kinder to it (less moving about). I’ve tried painkillers (paracetamol, ibuprofen…). None of this has worked, and I can’t even use crutches for a while either now my shoulders have decided to join the painful joint club! So, last week, I decided to go and see a GP about this nuisance joint. I’ve owned up that I’m not coping particularly well with the pain (unlike me to be honest about that..) and that I think it needs some attention from a medical pro!

My condition hasn’t been followed up at all since the last NHS surgery was done 6 years ago – and even then, the check ups were just in relation to the frame that had been fitted to my leg. Whether my body needs medical attention has – until now – been left to me to determine. This hasn’t impressed my new GP, who feels that the joints should have been monitored to prevent the pain getting as bad as it has (to the point where I’ve opted to work from home when I can, so I can wrap the knee up in heated blankets or with heat pads to relieve the pain). So, the new GP has given me a prescription for a stronger painkiller for the short-term, but has also sent me to have an x-ray of the knee joint. I have an appointment next week to discuss the x-ray and the next move (which I’m afraid may well be joint replacement – which will be quite something to juggle with my current life plans). The GP has said before this appointment, he will read through my medical notes so he can give the best advice and referrals… this is partially great news, as it means maybe something can be done to reduce the pain, but also something I’m dreading – as once again, this condition has the potential to throw a spanner in the works of my life!

There isn’t a conclusive point to this post… I just thought I’d write it now, so those who read this blog to see what they/their children may face when living with pseudoachondroplasia can follow through what happened and when – as I think this is the beginning of the next joint problem journey!



6 Responses to “What’s next for the knees?”

  1. Jamie February 18, 2017 at 6:51 pm #

    ❤ I’m sorry to read this. Here is some (possibility helpful?) information:
    Thinking of you, Ruby!

    • Jamie February 18, 2017 at 6:53 pm #

      And thank you for sharing your stories with us, especially those of us with children with pseudoachondroplasia. I am grateful for this blog and all of the information it provides!

      • rubysoniaallen February 18, 2017 at 9:05 pm #

        I’m pleased it is of some use to you 🙂 x

  2. Guy February 18, 2017 at 7:10 pm #

    Thank you Ruby . We miss seeing you on Facebook. Sorry to hear about your knee joints.We all are wishing you the best ! Xx Guy

    • rubysoniaallen February 18, 2017 at 9:04 pm #

      Thank you Guy! I hope Evie is recovering well from her recent surgery 🙂 x

  3. ¨Frabcises July 8, 2017 at 12:21 pm #

    hi My name is Francise, I have Pseudoachondroplasia, I am 36, my knee pain is quite pad latelly, I also find it defficulate to walk, any tipe on things to do or a good DR. to see, I am in London, but I can go anywhere. Thanks

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